Muscular Dystrophy Association (MDA)

Serves people living with muscular dystrophy, ALS, and related neuromuscular diseases. The website has information on treatments, clinical studies, college scholarships, and a searchable directory to find care providers across the country. They host an annual summer camp for kids and young adults with neuromuscular disease at no cost to families, with in-person and virtual options. Families can call the Resource Center for one-to-one support and help finding resources.
1016 West Jackson Boulevard, Chicago, Illinois 60607
Corporate Office: (1-800) 572-1717
Resource Center: (1-833) 275-6321
MDA.org