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Omphalocele

Casey Cares

Offers palliative programs for families with critically ill children to keep spirits high and make lasting memories. Programs include opportunities for families to enjoy local attractions and outings, surprise gifts for birthdays, new pajamas for children who are homebound or during an extended hospital stay, gift cards for grocery assistance and themed parties for Casey Cares families across the country to meet. Families who have lost a child can continue to receive services for one year and are encouraged to participate in a monthly bereavement support group. Families must complete the online application for services, including medical documentation to be completed by the child’s health care staff.
Ohio Region: 7775 Walton Parkway, New Albany, Ohio 43054
Application Questions: (443) 568-0064
General: (888) 568-0060
caseycares.org

O Warrior (Omphalocele Resources)

Provides resources and support for families affected by an omphalocele diagnosis. They offer virtual support groups for parents and an online community map to help families connect and know they’re not alone. They also host educational webinars and mail educational materials to families or medical professionals for free. The Car Seat Pass Down Program provides Jefferson Car Seats and Hope Car Beds for families who otherwise could not afford these medical devices. Families can also apply for O Warrior Grants for financial assistance to help with costs associated with medical care, long distance travel, or special living arrangements. The O Angel Program offers free keepsakes for mothers of who have lost a child to remember their O Angel babies. Visit the website for program applications or to contact the organization directly.
owarrior.org

Oracle Health Foundation

Provides financial grants to help cover costs related to children’s healthcare needs. Grants are provided for clinical costs, equipment costs, displacement, or vehicle modification. Examples of expenses covered include lodging and transportation related to a child’s care, clinical procedures, medicine, care devices/medical equipment, and assistive equipment. The grant recipient must be 21 years of age or younger, be under the care of a physician, and have no existing insurance coverage for the requested expenses. Families may request funds once per 12 months, with a maximum of three times in a child’s lifetime. Visit the website to complete an application.
(816) 573-6050
oraclehealthfoundation.org/pediatric-grants

Make A Wish Foundation of Ohio, Kentucky & Indiana

Grants wishes for children diagnosed with critical illnesses. Children must be between the ages of 2-18 and not have received a wish from another wish-granting organization. Parents, family members, and professionals can refer a child by completing the form on their website.

  • Central Ohio and Chapter Headquarters: 2545 Farmers Drive, Columbus, Ohio 43235
    (614) 923-0555
  • Northern Ohio: 6060 Rockside Woods Boulevard, Independence, Ohio 44131
    (216) 241-3670
  • Southern Ohio: 4500 Cooper Road, Cincinnati, Ohio 45242
    (513) 745-9474

Chapter website: wish.org/oki
National website: wish.org

UnitedHealthcare Children’s Foundation (UHCCF)

Provides medical grants for families to pay for healthcare services related to a major medical condition that are not covered by their family’s insurance plan. Children must be 16 years old or younger, be a U.S. citizen, and have coverage through a commercial health plan to qualify for a grant. Families must meet income eligibility requirements. Applications must be submitted on a computer, not phone or tablet. Visit the website for a full list of requirements and for application instructions.
(855) 698-4223
uhccf.org

National Association for Rare Disorders (NORD)

Helps individuals and families impacted by rare diseases and provides information in English and Spanish. Use the State Resource Center to find programs by state. They have several financial assistance programs to help cover costs of life-saving medication, caregiver aid or respite care, and educational support. The NORD Support Helpline offers help accessing programs from an Information and Resource Services team member. They also have information on joining a clinical trial or study.
NORD Support Helpline: (800) 999-6673
Español: (844) 259-7178
rarediseases.org

Red Treehouse

Online resource directory supporting families and children with life challenges, disabilities, and healthcare needs from prenatal to age 25. The website helps families find resources such as special education, legal support, financial support for rare diseases, and more. Users can search for resources by need or medical condition.
redtreehouse.org

Health Information Websites

The websites below offer helpful health information from reputable sources on topics such as healthy lifestyle, diseases, prevention, and treatment.

  • CDC: Find an A-Z library on health conditions, vaccines, current disease outbreaks, and prevention.
  • Healthy Children: Information on kids health and development, parenting, and more from the American Academy of Pediatrics.
  • KidsHealth and TeensHealth: Tons of important health information throughout the lifespan from Nemours.
  • Mayo Clinic: Find symptoms, treatments, and when to see a doctor for various health conditions. They also have information on clinical trials and resources for professionals.
  • MedlinePlus: Look up drugs, supplements, medical tests, and health conditions from the National Library of Medicine.
  • MyPlate: Healthy eating and nutrition throughout the lifespan.
  • Oncolink: Information about various types of cancer, treatments, and support from cancer experts.
  • Safe Kids Worldwide: Find safety information and toolkits on a wide range of topics including water safety, car seats, safe infant sleep, medication safety, and more. They also publish a list of recent product recalls, parent guides to safety, and safety laws for professionals.

Nationwide Children’s Hospital (NCH) Health Information & Helping Hands

Offers educational materials for parents and caregivers from pediatric experts. Helping Hands are easy-to-read articles on topics including health conditions, caring for medical equipment at home, behavior support, medical tests, and caring for newborns. Visit the Conditions We Treat page for even more information on health conditions A-Z and how to get treatment.
Helping Hands: nationwidechildrens.org/helping-hands
Conditions We Treat: nationwidechildrens.org/conditions

Nationwide Children’s Hospital (NCH) Homecare

Provides a full range of homecare services to Central Ohio children of all ages, from newborns through young adults. Homecare offers the following areas of service:

  • Infusion Pharmacy
  • Pediatric Home Medical Equipment (includes aerosol equipment, wheelchairs and ambulatory supplies, blood pressure kits, apnea monitors, breast pumps, wound care, and more.)
  • Intermittent (Short-Term) Nursing and Private Duty (Long-Term) Nursing
  • Skilled Therapy Services (occupational therapy, physical therapy, speech and language therapy)
  • Hospice and Home-Based Palliative Care services for children with life-limiting illnesses

255 East Main Street, Columbus, Ohio 43215
(614) 355-1100
nationwidechildrens.org/homecare

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