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Cerebral Palsy

A Kid Again

With chapters across the county and throughout Ohio, A Kid Again provides family adventures for families raising a child with a life-threatening condition. Adventures are held year-round at destinations like theme parks, sporting events, and museums, and are completely free. Children must be 0-20 years old with a life-threatening diagnosis such as (but not limited to) cancer, epilepsy, cystic fibrosis, spinal muscular atrophy, or congenital heart defects. They have chapters in central, northern, and southwest Ohio. Families can visit the website to enroll.
777-E Dearborn Park Lane, Columbus, Ohio 43085
(614) 797-9500
AKidAgain.org/Ohio

American Academy of Pediatrics (AAP) Healthy Children

This website is a great source of verified health information for parents on a wide range of health topics, such as healthy living, family life, immunizations, child development, and medical conditions. They offer articles with topics including safety, disaster preparedness, fitness, school issues, dating, substance abuse, emotional wellness, psychiatric medications, grief and more. You can also use the website to find a pediatrician in your zip code. The website is produced by the American Academy of Pediatrics and all articles are written by pediatricians.
HealthyChildren.org

Boundless

Serves: Children, teens, individuals, and families with ID/DD and/or behavioral health challenges.
Provides person-centered care to people with intellectual and developmental disabilities and behavioral health challenges. They offer center and community-based behavioral health services, case management, long-term and temporary residential support, in-home and out-of-home respite services, and day programs. With Out Walls (WOW) is an adult day program that includes group activities and outings for individuals to explore interests and their community while making new friends. Healthcare services are available at Boundless Health in Worthington, Ohio. Boundless Health provides inclusive care for every age and family member, all in the same carefully designed facility to support the unique needs of the I/DD community. Health services include behavioral health, primary care, and dentistry.

  • Boundless Health Worthington:
    445 East Dublin-Granville Road, Worthington, Ohio 43085
    (614) 844-3800
  • Newark:
    22 North First Street, Newark, Ohio 43055
    (740) 334-4056
  • West Carrollton:
    700 Liberty Lane, West Carrollton, Ohio 45449
    (937) 247-2400
    Center-Based ABA: (937) 672-1587
  • Medina:
    1065 Medina Road, Medina, Ohio 44256
    (330) 596-1042
  • Perrysburg:
    28555 Starbright Boulevard, Perrysburg, Ohio 43551
    (567) 312-4722
  • Independence:
    6100 West Creek Road, Independence, Ohio 44131
    (216) 978-8115

(800) 409-2729
iamboundless.org

Casey Cares

Offers palliative programs for families with critically ill children to keep spirits high and make lasting memories. Programs include opportunities for families to enjoy local attractions and outings, surprise gifts for birthdays, new pajamas for children who are homebound or during an extended hospital stay, gift cards for grocery assistance and themed parties for Casey Cares families across the country to meet. Families who have lost a child can continue to receive services for one year and are encouraged to participate in a monthly bereavement support group. Families must complete the online application for services, including medical documentation to be completed by the child’s health care staff.
Ohio Region: 7775 Walton Parkway, New Albany, Ohio 43054
(443) 714-5004
National: (443) 568-0064
CaseyCares.org

Cerebral Palsy (CP) Parent Columbus

Family resource group bringing people and families living with CP together to share information, resources, personal experience, advice, and support.
(614) 868-0146
facebook.com/cpparentcolumbus

Cerebral Palsy Foundation

Access tons of helpful information about Cerebral Palsy resources, accessibility, inclusion, and research through the Cerebral Palsy Foundation. They have a video library, fact sheets, and a resource website.
Cerebral Palsy Resource Website: cpresource.org
Cerebral Palsy Foundation Website: yourcpf.org

Do It For the Love – Music Wish Grants

Supports music therapy, research, and provides live music experiences. They provide Wish Grants for people with life-threatening illnesses or children with severe challenges (such as disabilities or trauma). Family members, close friends/colleagues, or medical professionals can nominate someone for a Wish Grant. Nominations must include diagnosis confirmation. Visit the website to apply for a Wish Grant or contact the organization.
DoItForTheLove.org

Easterseals Central & Southeast Ohio

Serves: Children and adults with developmental disabilities.
Provides comprehensive health services for children and adults living with disabilities. Services in Franklin County include early childhood intervention for ages 12-36 months, Chance to Dance free dance classes for families, Long-Term Care Ombudsman for long-term care support, and summer day camps for children. Adult day services are available in Lawrence, Medina, Ross, Scioto, and Summit counties.
3830 Trueman Court, Hilliard, Ohio 43026
Long-term Care Ombudsman: (614) 345-9198
All other services: (614) 228-5523
Easterseals.com/CentralOhio

Growing Harmonies Music Therapy Services

Program: Provides client-centered music therapy to address cognitive, emotional, communication, and social skills. Offers individual music therapy, school-based services, and child/caregiver social groups.
Eligibility: Ages 3-25 with neurodevelopmental diagnoses including autism, developmental delays, Down syndrome, cerebral palsy, speech and language delays, ADHD, and behavioral disorders.
Cost: Fee-for-service. Accepts self/private pay, Medicaid Waiver, private insurance, and HSA may be accepted on a case-by-case basis.
Referral: Contact to schedule a free 15-minute phone consultation.
123 West Longview Avenue, Columbus, Ohio 43202
growingharmoniesmusictherapyservices.com

Health Information Websites

The websites below offer helpful health information from reputable sources on topics such as healthy lifestyle, diseases, prevention, and treatment.

  • CDC: Find an A-Z library on health conditions, vaccines, current disease outbreaks, and prevention.
  • Healthy Children: Information on kids health and development, parenting, and more from the American Academy of Pediatrics.
  • KidsHealth and TeensHealth: Tons of important health information throughout the lifespan from Nemours.
  • Mayo Clinic: Find symptoms, treatments, and when to see a doctor for various health conditions. They also have information on clinical trials and resources for professionals.
  • MedlinePlus: Look up drugs, supplements, medical tests, and health conditions from the National Library of Medicine.
  • Nemours: Offers information on a wide range of topics from health experts for kids, teens, and parents.
  • Oncolink: Information about various types of cancer, treatments, and support from cancer experts.
  • Safe Kids Worldwide: Find safety information and toolkits on a wide range of topics including water safety, car seats, safe infant sleep, medication safety, and more. They also publish a list of recent product recalls, parent guides to safety, and safety laws for professionals.

McLindon Family Foundation (MFF)

Provides free adaptive bikes to children and young adults with conditions like Spina Bifida, Cerebral Palsy, Down Syndrome, Hydrocephalus, Autism, and more. Families may contact the organization directly to start the application process, which includes an application, interview, and letter from the family’s therapist. Wait times vary by state.
8305 Tom Drive, Baton Rouge, Louisiana 70815
(225) 456-3505
mclindonfamilyfoundation.org

National Organization for Rare Disorders (NORD)

Helps individuals and families impacted by rare diseases and provides information in English and Spanish. Use the State Resource Center to find programs by state. They have several financial assistance programs to help cover costs of life-saving medication, caregiver aid or respite care, and educational support. The NORD Support Helpline offers help accessing programs from an Information and Resource Services team member. They also have information on joining a clinical trial or study.
NORD Support Helpline: (800) 999-6673
Español: (844) 259-7178
RareDiseases.org

Nationwide Children’s Hospital (NCH) Adaptive Sports Medicine Program

Provides individualized treatment for children, adolescents, and young adults with physical disabilities. Services include injury evaluation, rehabilitation, and adaptive athletic training.
Livingston Orthopedic & Surgery Center: 405 Butterfly Gardens Drive, Columbus, Ohio 43215
(614) 355-6000
nationwidechildrens.org/adaptive-sports-medicine-program

Nationwide Children’s Hospital (NCH) Cerebral Palsy Program

Devoted to children and adolescents with cerebral palsy. Families can see a variety of specialists in one clinic visit. Testing, such as x-rays or lab work, is available as needed. Families are linked with medical, educational, social and financial resources in the community as needed. The website also provides resource listings.
479 Parsons Avenue, Columbus, Ohio 43215
700 Children’s Drive, Columbus, Ohio 43205
Referral: (614) 722-5136
nationwidechildrens.org/cerebral-palsy-program

Nationwide Children’s Hospital (NCH) Health Information & Helping Hands

Offers educational materials for parents and caregivers from pediatric experts. Helping Hands are easy-to-read articles on topics including health conditions, caring for medical equipment at home, behavior support, medical tests, and caring for newborns. Visit the Conditions We Treat page for even more information on health conditions A-Z and how to get treatment.
Helping Hands: NationwideChildrens.org/Helping-Hands
Conditions We Treat: NationwideChildrens.org/Conditions

Nationwide Children’s Hospital (NCH) Homecare

Provides a full range of homecare services to Central Ohio children of all ages, from newborns through young adults. Homecare offers the following areas of service:

  • Infusion Pharmacy
  • Pediatric Home Medical Equipment (includes aerosol equipment, wheelchairs and ambulatory supplies, blood pressure kits, apnea monitors, breast pumps, wound care, and more.)
  • Intermittent (Short-Term) Nursing and Private Duty (Long-Term) Nursing
  • Skilled Therapy Services (occupational therapy, physical therapy, speech and language therapy)
  • Hospice and Home-Based Palliative Care services for children with life-limiting illnesses

255 East Main Street, Columbus, Ohio 43215
(614) 355-1100
NationwideChildrens.org/Homecare

Nationwide Children’s Hospital (NCH) Occupational, Speech & Physical Therapy Programs

Provides developmental occupational therapy (OT), speech and language therapy, and physical therapy (PT) services. Services are provided at the main hospital and at many clinic locations throughout the community, for children from birth to age 21.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2200
Occupational Therapy: nationwidechildrens.org/specialties/occupational-therapy
Speech Pathology: nationwidechildrens.org/specialties/speech-pathology
Physical Therapy: nationwidechildrens.org/specialties/physical-therapy

Nationwide Children’s Hospital (NCH) Physical Medicine & Rehabilitation (PM&R)

Specializes in the diagnosis and management of children with physically disabling conditions. Services include wheelchair and seating evaluations, prosthetic evaluations, spasticity management, electrodiagnosis, concussion clinic, and more.
(614) 722-6200
nationwidechildrens.org/physical-medicine-rehabilitation

Next Chapter Book Club (NCBC)

Community-based book club program for adolescents and adults with Down Syndrome, Autism, Cerebral Palsy and other intellectual and developmental disabilities. A small group meets with trained facilitators at bookstores, cafés, and public libraries throughout Franklin County. Anyone can participate, whatever their reading or ability level. Members experience an inclusive community focused on reading to learn together and build friendships, rather than learning to read. The Franklin County chapter is hosted by The Ohio State University Nisonger Center.
1581 Dodd Drive, Columbus, Ohio 43210
(614) 685-6718
Franklin County: nisonger.osu.edu/adolescent/adolescent-clinics-services/next-chapter-book-club-2
National Website: nextchapterbookclub.org

Onward Pediatric Therapies

Program: Outpatient, intensive, and group physical and occupational therapy. Services include traditional occupational and physical therapy (PT and OT), intensive PT and OT, PT and OT evaluations, Dynamic Movement Intervention (DMI), spinal stimulation, feeding therapy, sensory & emotional regulation, and social groups. They also offer summer camp with outdoor activities, social groups, sensory play, and more.
Eligibility: Ages 0-18 with neurodevelopmental diagnoses (including cerebral palsy, autism, down syndrome, spina bifida, genetic disorders, sensory processing delay, or feeding disorders).
Cost: Fee-for-service only. They do not accept insurance, Medicaid, or waivers.
Referral: Families may refer themselves and schedule appointments online.
3246 West Henderson Road, Columbus, Ohio 43220
onwardpediatrictherapies.com

Oracle Health Foundation Pediatric Grants

Provides financial grants to help cover costs related to children’s healthcare needs. Grants are provided for clinical costs, equipment costs, displacement, or vehicle modification. Examples of expenses covered include lodging and transportation related to a child’s care, clinical procedures, medicine, care devices/medical equipment, and assistive equipment. The grant recipient must be 21 years of age or younger, be under the care of a physician, and have no existing insurance coverage for the requested expenses. Families may request funds once per 12 months, with a maximum of three times in a child’s lifetime. Visit the website to complete an application.
OracleHealthFoundation.org/Pediatric-Grants

Ronald McDonald House Resource Link (Formerly Red Treehouse)

Online resource directory supporting families and children with life challenges, disabilities, and healthcare needs from prenatal to age 25. The website helps families find resources such as special education, legal support, financial support for rare diseases, and more. Users can search for resources by need or medical condition.
RonaldMcDonaldHouseResourceLink.org

Safe Place Bedding

Provides safety beds and solutions to improve quality of life for children and adults with disabilities, whether at home or traveling. Families can go online to order a permanent bed, travel bed, and other safety items. The beds are Medicaid-approved in Ohio. The company accepts insurance and provides liaison services to coordinate care between your physician and insurance. Their in-house physical therapist can assist with Letter of Medical Necessity if needed.
Call or Text: (614) 602-5196
Click Here for Program Brochure
Website: safeplacebedding.com

Southeastern Ohio Center for Independent Living (SOCIL)

Assists people of all ages with disabilities to live more independently. The majority of their board and staff are people with disabilities assisting others. Services include peer support, independent living skills training, adaptive sports and wellness, help with youth school transitions, and referrals to community resources. The Assistive Technology program loans eating utensils, screen readers, magnifiers, autism sensory items, and more. They also offer free group living skills classes and support for youth with IEPs. Services are free to anyone with a disability in the Southeast Ohio region. They serve Athens, Fairfield, Hocking, Jackson, Meigs, Morgan, Perry, Vinton, and Washington counties.
418 South Broad Street, Lancaster, Ohio 43130
(740) 689-1494
SOCIL.org

The LENN Foundation

Family-owned nonprofit providing grant assistance for children with Cerebral Palsy to receive pediatric intensive therapies. Visit the website to contact the organization.
102 West Main Street, New Albany, Ohio 43054
thelennfoundation.org/contact

The Perlman Center for Cerebral Palsy (Assistive Technology)

Provides care for children, adolescents, and adults with cerebral palsy, muscular dystrophy, spina bifida, spinal cord injury, and other neuromuscular disabilities at multiple locations through Cincinnati Children’s Hospital. Services include case management, occupational therapy, speech therapy, and early childhood integrated therapies. They also provide comprehensive assistive technology evaluations for all ages.
(513) 636-4601
3333 Burnet Avenue, Cincinnati, Ohio 45229
5642 Hamilton Avenue, Cincinnati, Ohio 45224
9560 Children’s Drive, Mason, Ohio 45040
cincinnatichildrens.org/service/a/aaron-perlman-center

United Cerebral Palsy (USP)

Serves children and adults with disabilities in the greater Cleveland area. Services include occupational therapy (OT), physical therapy (PT), speech-language therapy, educational day programs, summer camps, adult day services, and assistive technology assessments.
10011 Euclid Avenue, Cleveland, Ohio 44106
(216) 791-8363
ucpcleveland.org

UnitedHealthcare Children’s Foundation (UHCCF)

Provides medical grants for families to pay for healthcare services related to a major medical condition that are not covered by their family’s insurance plan. Children must be 16 years old or younger, be a U.S. citizen, and have coverage through a commercial health plan to qualify for a grant. Families must meet income eligibility requirements. Applications must be submitted on a computer, not phone or tablet. Visit the website for a full list of requirements and for application instructions.
(855) 698-4223
UHCCF.org

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