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Cardiac (Heart) Conditions

A Kid Again

With chapters across the county and throughout Ohio, A Kid Again provides family adventures for families raising a child with a life-threatening condition. Adventures are held year-round at destinations like theme parks, sporting events, and museums, and are completely free. Children must be 0-20 years old with a life-threatening diagnosis such as (but not limited to) cancer, epilepsy, cystic fibrosis, spinal muscular atrophy, or congenital heart defects. They have chapters in central, northern, and southwest Ohio. Families can visit the website to enroll.
777-E Dearborn Park Lane, Columbus, Ohio 43085
(614) 797-9500
AKidAgain.org/Ohio

A Special Wish (ASW) Foundation

Enhances the quality of life for children with a life-threatening illness by granting their special wish. Children must be 0-20 years old, diagnosed with a life-threatening or terminal illness, and not already served through another wish-granting organization to qualify. A Special Wish has chapters in central, northeast, southwest, and southeast Ohio. Anyone can refer a child by completing the Refer a Child form on their website. Call the organization for additional details.
620 Taylor Station Road, Gahanna, Ohio 43230
(614) 258-3186
ASpecialWishFoundation.org/Refer-A-Child

American Academy of Pediatrics (AAP) Healthy Children

This website is a great source of verified health information for parents on a wide range of health topics, such as healthy living, family life, immunizations, child development, and medical conditions. They offer articles with topics including safety, disaster preparedness, fitness, school issues, dating, substance abuse, emotional wellness, psychiatric medications, grief and more. You can also use the website to find a pediatrician in your zip code. The website is produced by the American Academy of Pediatrics and all articles are written by pediatricians.
HealthyChildren.org

American Heart Association

The publisher for the official guidelines for CPR and Emergency Cardiovascular Care (ECC). Use the website to find CPR and Basic Life Support (BLS) trainings near you, or to purchase training materials. They also have helpful information on heart-healthy living (such as eating, fitness, quitting smoking), heart conditions (heart attack and stroke symptoms, congenital heart defects, and more), and tools for healthcare professionals and educators.
(800) 242-8721
Main Website: Heart.org
CPR Classes: CPR.Heart.org

Casey Cares

Offers palliative programs for families with critically ill children to keep spirits high and make lasting memories. Programs include opportunities for families to enjoy local attractions and outings, surprise gifts for birthdays, new pajamas for children who are homebound or during an extended hospital stay, gift cards for grocery assistance and themed parties for Casey Cares families across the country to meet. Families who have lost a child can continue to receive services for one year and are encouraged to participate in a monthly bereavement support group. Families must complete the online application for services, including medical documentation to be completed by the child’s health care staff.
Ohio Region: 7775 Walton Parkway, New Albany, Ohio 43054
(443) 714-5004
National: (443) 568-0064
CaseyCares.org

Do It For the Love – Music Wish Grants

Supports music therapy, research, and provides live music experiences. They provide Wish Grants for people with life-threatening illnesses or children with severe challenges (such as disabilities or trauma). Family members, close friends/colleagues, or medical professionals can nominate someone for a Wish Grant. Nominations must include diagnosis confirmation. Visit the website to apply for a Wish Grant or contact the organization.
DoItForTheLove.org

Do More Foundation

Offers financial assistance for families who need financial help due to their child’s medical needs. Includes help with utility/rent bills, meal expenses while at the hospital, gas expenses for travel to and from hospital or doctor visits, non-covered medical expenses, non-covered supplies that would aid the child in their treatment and funeral expenses related to the death of a child. Go online for additional contact information and to apply for assistance.
PO Box 1981, Pompano Beach, Florida 33061
(954) 857-9059
TheDoMoreFoundation.org

Health Information Websites

The websites below offer helpful health information from reputable sources on topics such as healthy lifestyle, diseases, prevention, and treatment.

  • CDC: Find an A-Z library on health conditions, vaccines, current disease outbreaks, and prevention.
  • Healthy Children: Information on kids health and development, parenting, and more from the American Academy of Pediatrics.
  • KidsHealth and TeensHealth: Tons of important health information throughout the lifespan from Nemours.
  • Mayo Clinic: Find symptoms, treatments, and when to see a doctor for various health conditions. They also have information on clinical trials and resources for professionals.
  • MedlinePlus: Look up drugs, supplements, medical tests, and health conditions from the National Library of Medicine.
  • Nemours: Offers information on a wide range of topics from health experts for kids, teens, and parents.
  • Oncolink: Information about various types of cancer, treatments, and support from cancer experts.
  • Safe Kids Worldwide: Find safety information and toolkits on a wide range of topics including water safety, car seats, safe infant sleep, medication safety, and more. They also publish a list of recent product recalls, parent guides to safety, and safety laws for professionals.

Make A Wish Foundation of Ohio, Kentucky & Indiana

Grants wishes for children diagnosed with critical illnesses. Children must be between the ages of 2-18 and not have received a wish from another wish-granting organization. Parents, family members, and professionals can refer a child by completing the form on their website.

  • Central Ohio and Chapter Headquarters: 2545 Farmers Drive, Columbus, Ohio 43235
    (614) 923-0555
  • Northern Ohio: 6060 Rockside Woods Boulevard, Independence, Ohio 44131
    (216) 241-3670
  • Southern Ohio: 4500 Cooper Road, Cincinnati, Ohio 45242
    (513) 745-9474

Chapter website: Wish.org/OKI
National website: Wish.org

Mom’s Meals

Provides home-delivered, medically tailored meals to help people manage chronic conditions, recover from illness, or continue to live independently. Menu options include diabetes-friendly, heart-friendly, renal-friendly, halal, kosher, vegetarian, lower sodium, pureed, high protein or general wellness. Meals may be provided for free or at a discount for customers who are over 65, disabled, being discharged from a medical facility, or are on a Medicaid / Medicare Advantage plan that offers a paid meal benefit. Customers may also choose to self-pay for meals.  Mom’s Meals cannot determine eligibility for customers. You must contact your Medicaid provider of Area Agency on Aging to submit an authorization on your behalf to use benefits. Case managers may also enroll clients. Mom’s Meals also offers nutritional supplement delivery and nutritional counseling.
3210 Southeast Corporate Woods Drive, Ankeny, Iowa 50021
(877) 508-6667
MomsMeals.com/OH-Programs

Nationwide Children’s Hospital (NCH) Homecare

Provides a full range of homecare services to Central Ohio children of all ages, from newborns through young adults. Homecare offers the following areas of service:

  • Infusion Pharmacy
  • Pediatric Home Medical Equipment (includes aerosol equipment, wheelchairs and ambulatory supplies, blood pressure kits, apnea monitors, breast pumps, wound care, and more.)
  • Intermittent (Short-Term) Nursing and Private Duty (Long-Term) Nursing
  • Skilled Therapy Services (occupational therapy, physical therapy, speech and language therapy)
  • Hospice and Home-Based Palliative Care services for children with life-limiting illnesses

255 East Main Street, Columbus, Ohio 43215
(614) 355-1100
NationwideChildrens.org/Homecare

Ronald McDonald House Resource Link (Formerly Red Treehouse)

Online resource directory supporting families and children with life challenges, disabilities, and healthcare needs from prenatal to age 25. The website helps families find resources such as special education, legal support, financial support for rare diseases, and more. Users can search for resources by need or medical condition.
RonaldMcDonaldHouseResourceLink.org

VAccess

This website was designed with primary care clinicians to provide support and information on rare or complicated vascular anomalies. The website includes easy to understand educational resources for patients, caregivers, and professionals. They also have tools to find advocacy groups and vascular anomaly centers near you. The “Ask a Specialist” tool allows clinicians to send clinical questions to a network of vascular anomaly specialists across the U.S.
VAccess.org

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