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Epilepsy / Seizures / Neurologic Disorders

A Kid Again

With chapters across the county and throughout Ohio, A Kid Again provides free fun adventures, hospital visitations and parents’ nights out for families with children ages 0-20 with a life-threatening medical illness. Visit the website to find your local chapter, upcoming Adventures, and enroll online for free.
281 Cramer Creek Court, Dublin, Ohio 43017
(614) 362-3042
akidagain.org/chapter/central-ohio-chapter

Ability Matters

Serves: Students ages 3-21, individuals, and families. 
Supports individuals with autism and other neurological disabilities. Services include intervention training and support, customized and individualized learning options through the Ohio Autism Scholarship Program, and independent supportive living. The Beyond Ability Matters program provides housing, educational experiences like preparing for a job interview, and community outings. Services are offered by trained and experienced care providers.
425 Metro Place North, Dublin, Ohio 43017
(614) 956-1229
abilitymattersohio.com

Boundless

Serves: Children, teens, individuals, and families with ID/DD and/or behavioral health challenges.
Provides person-centered care to people with intellectual and developmental disabilities and behavioral health challenges. They offer center and community-based behavioral health services, case management, long-term and temporary residential support, in-home and out-of-home respite services, and day programs. Healthcare services are available at Boundless Health in Worthington, Ohio. Boundless Health provides inclusive care for every age and family member, all in the same carefully-designed facility to support the unique needs of the I/DD community. Health services include behavioral health, primary care, and dentistry.

  • Boundless Health Worthington:
    445 East Dublin-Granville Road, Worthington, Ohio 43085
    (614) 844-3800
  • Newark:
    22 North First Street, Newark, Ohio 43055
    (740) 334-4056
  • West Carrollton:
    700 Liberty Lane, West Carrollton, Ohio 45449
    (937) 247-2400
    Center-Based ABA: (937) 672-1587
  • Mahoning Valley Campus of Care:
    1960 East County Line Road, Mineral Ridge, Ohio 44440
    (330) 596-1042
  • Medina:
    1065 Medina Road, Medina, Ohio 44256
    (330) 596-1042
  • Perrysburg:
    28555 Starbright Boulevard, Perrysburg, Ohio 43551
    (567) 312-4722

(800) 409-2729
iamboundless.org

Casey Cares

Offers palliative programs for families with critically ill children to keep spirits high and make lasting memories. Programs include opportunities for families to enjoy local attractions and outings, surprise gifts for birthdays, new pajamas for children who are homebound or during an extended hospital stay, gift cards for grocery assistance and themed parties for Casey Cares families across the country to meet. Families who have lost a child can continue to receive services for one year and are encouraged to participate in a monthly bereavement support group. Families must complete the online application for services, including medical documentation to be completed by the child’s health care staff.
Ohio Region: 7775 Walton Parkway, New Albany, Ohio 43054
Application Questions: (443) 568-0064
General: (888) 568-0060
caseycares.org

Center for Courageous Kids (CCK)

Offers free summer camps and family retreat experiences for seriously ill children, in a safe, medically supervised environment. Medical care is provided by volunteer physicians and nurses coordinated by a full-time medical director. They provide camps for kids with asthma, cancer, cerebral palsy, diabetes, blood disorders, muscular dystrophy, sickle cell, spina bifida and more.
1501 Burnley Road, Scottsville, Kentucky 42164
(270) 618-2900
courageouskids.org

Epilepsy Alliance Ohio

Serves individuals and families impacted by epilepsy/seizure disorders. Programs include free mental health counseling, summer camp for children with epilepsy, in-person and virtual adult support groups, academic scholarships for students with epilepsy seeking higher education, and trainings for professionals. They operate four residential group homes for adults with epilepsy and/or developmental disabilities. They also offer a free, yearly art therapy program for adults. Their service area includes 64 counties in Ohio, 10 counties in Kentucky, and 2 counties in Indiana.
Cincinnati: 895 Central Avenue, Cincinnati, Ohio 45202
(877) 804-2241
Columbus: 3857 North High Street, Columbus, Ohio 43214
(614) 725-1015
Art Therapy: (614) 725-1031
epilepsy-ohio.org

Epilepsy Foundation

Provides in-depth information and resources for people living with epilepsy. The Epilepsy & Seizure Hotline is also offered 24-hours for information and referrals to support. They have free, online courses for individuals and professionals on topics like Seizure Safety and Navigating the Workplace with Epilepsy. You can also find information on help paying for prescriptions, clinical trials and research, camps and family programming, support groups, and more.
3540 Crain Highway, Bowie, Maryland 20716
Technical Support: (800) 332-1000
24/7 Epilepsy & Seizures Helpline: (800) 332-1000 or (866) 748-8008 for Español
epilepsy.com

Epilepsy Foundation – Epilepsy Legal Defense Fund

Legal Defense Fund through the Epilepsy Foundation to help end epilepsy-related discrimination. Their Attorney Network is made of experience attorneys who have agreed to provide some level of free legal services. They can help with cases related to employment, education, public accommodations, police and first responder services, housing, healthcare, and criminal justice. Go online to complete an Application for Assistance.
(800) 332-1000
epilepsy.com/living-epilepsy/legal-help
Application for Assistance: epilepsy.com/forms/application

Fore Hope

Empowers adults ages 18+ with neurological conditions (including stroke, Parkinson’s disease, multiple sclerosis, and TBI) through golf. Participants meet with a recreational and physical therapist and are provided adaptive equipment if needed.
(614) 566-4242
ohiohealth.com/forehope

Health Information Websites

The websites below offer helpful health information from reputable sources on topics such as healthy lifestyle, diseases, prevention, and treatment.

  • CDC: Find an A-Z library on health conditions, vaccines, current disease outbreaks, and prevention.
  • Healthy Children: Information on kids health and development, parenting, and more from the American Academy of Pediatrics.
  • KidsHealth and TeensHealth: Tons of important health information throughout the lifespan from Nemours.
  • Mayo Clinic: Find symptoms, treatments, and when to see a doctor for various health conditions. They also have information on clinical trials and resources for professionals.
  • MedlinePlus: Look up drugs, supplements, medical tests, and health conditions from the National Library of Medicine.
  • MyHealthfinder: Offers information on nutrition, vaccines, and health conditions from the Office of Disease Prevention and Health Promotion.
  • MyPlate: Healthy eating and nutrition throughout the lifespan.
  • Oncolink: Information about various types of cancer, treatments, and support from cancer experts.
  • Safe Kids Worldwide: Find safety information and toolkits on a wide range of topics including water safety, car seats, safe infant sleep, medication safety, and more. They also publish a list of recent product recalls, parent guides to safety, and safety laws for professionals.

McLindon Family Foundation (MFF)

Provides free adaptive bikes to children and young adults with conditions like Spina Bifida, Cerebral Palsy, Down Syndrome, Hydrocephalus, Autism, and more. Families may contact the organization directly to start the application process, which includes an application, interview, and letter from the family’s therapist. Wait times vary by state.
8305 Tom Drive, Baton Rouge, Louisiana 70815
(225) 456-3505
mclindonfamilyfoundation.org

Mercy Medical Angels

Provides non-emergency, long-distance ground transportation for patients traveling for treatment. Patients must be ambulatory and meet income guidelines. Patients may receive gas cards, bus, train, or airline tickets. Trips within a local area or community is typically not handled, but exceptions may be made on a case-by-case basis. Visit the website for contact information.
101 West Main Street, Norfolk, Virginia 23510
mercymedical.org

Michael Dean Gibbs (MDG) Foundation Grants for Youth in Licking County

Awards scholarships for youth who live or go to school in or near Licking County. The Empowerment Scholarship may be used to cover tuition, equipment, supplies or other costs for academic, artistic, or athletic/recreational activities. The Inclusion Award provides funding for kids with disabilities, delays, or giftedness to reach their full potential. The Change-Maker Grant is for children or groups to implement a project that makes their community a better place. Scholarships are awarded to youth up to grade 12 or pursuing a GED. The MDG Foundation was founded in honor of Michael Dean Gibbs, a former resident of Granville, Ohio, who passed away from ALS/Lou Gehrig’s Disease in 2018. Application deadlines are quarterly throughout the year. Visit the website to apply.
michaeldeangibbs.org

Midwest Genetics Network (MGN)

Works with patients and healthcare providers to help improve access to genetic services for medically underserved populations and those with genetic conditions. Use the Find a Genetic Service page on their website to search for care providers by zip code. The Journey Through Diagnosis website and app provides a detailed guide for families on coping with emotions related to a genetic diagnosis, accessing medical care and support services, navigating insurance, and more.
journey.midwestgenetics.org

Muscular Dystrophy Association (MDA)

Serves people living with muscular dystrophy, ALS, and related neuromuscular diseases. The website has information treatments, clinical studies, college scholarships, and a searchable directory to find care providers across the country. They host an annual summer camp for kids and young adults with neuromuscular disease at no cost to families, with in-person and virtual options. Families can call the Resource Center for one-to-one support and help finding resources.
1016 West Jackson Boulevard, Chicago, Illinois 60607
Corporate Office: (800) 572-1717
Resource Center: (833) 275-6321
mda.org

National Association for Rare Disorders (NORD)

Helps individuals and families impacted by rare diseases and provides information in English and Spanish. Use the State Resource Center to find programs by state. They have several financial assistance programs to help cover costs of life-saving medication, caregiver aid or respite care, and educational support. The NORD Support Helpline offers help accessing programs from an Information and Resource Services team member. They also have information on joining a clinical trial or study.
NORD Support Helpline: (800) 999-6673
Español: (844) 259-7178
rarediseases.org

Nationwide Children’s Hospital (NCH) Adaptive Sports Medicine Program

Provides individualized treatment for children, adolescents, and young adults with physical disabilities. Services include injury evaluation, rehabilitation, and adaptive athletic training.
Livingston Orthopedic & Surgery Center: 405 Butterfly Gardens Drive, Columbus, Ohio 43215
(614) 355-6000
nationwidechildrens.org/adaptive-sports-medicine-program

Nationwide Children’s Hospital (NCH) Epilepsy Center

Level-4 Epilepsy Program providing comprehensive pediatric epilepsy care. Provides neurodiagnostic evaluations and monitoring, and extensive medical, neuropsychological and psychosocial treatment for children and adolescents with epilepsy.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-4625 or (614) 722-6200
nationwidechildrens.org/epilepsy-center

Nationwide Children’s Hospital (NCH) Health Information & Helping Hands

Offers educational materials for parents and caregivers from pediatric experts. Helping Hands are easy-to-read articles on topics including health conditions, caring for medical equipment at home, behavior support, medical tests, and caring for newborns. Visit the Conditions We Treat page for even more information on health conditions A-Z and how to get treatment.
Helping Hands: nationwidechildrens.org/helping-hands
Conditions We Treat: nationwidechildrens.org/conditions

Nationwide Children’s Hospital (NCH) Homecare

Provides a full range of homecare services to Central Ohio children of all ages, from newborns through young adults. Homecare offers the following areas of service:

  • Infusion Pharmacy
  • Pediatric Home Medical Equipment (includes aerosol equipment, wheelchairs and ambulatory supplies, blood pressure kits, apnea monitors, breast pumps, wound care, and more.)
  • Intermittent (Short-Term) Nursing and Private Duty (Long-Term) Nursing
  • Skilled Therapy Services (occupational therapy, physical therapy, speech and language therapy)
  • Hospice and Home-Based Palliative Care services for children with life-limiting illnesses

255 East Main Street, Columbus, Ohio 43215
(614) 355-1100
nationwidechildrens.org/homecare

Nationwide Children’s Hospital (NCH) Occupational, Speech & Physical Therapy Programs

Provides developmental occupational therapy (OT), speech and language therapy, and physical therapy (PT) services. Services are provided at the main hospital and at many clinic locations throughout the community, for children from birth to age 21.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2200
Occupational Therapy: nationwidechildrens.org/specialties/occupational-therapy
Speech Pathology: nationwidechildrens.org/specialties/speech-pathology
Physical Therapy: nationwidechildrens.org/specialties/physical-therapy

Nationwide Children’s Hospital (NCH) Physical Medicine & Rehabilitation (PM&R)

Specializes in the diagnosis and management of children with physically disabling conditions. Services include wheelchair and seating evaluations, prosthetic evaluations, spasticity management, electrodiagnosis, concussion clinic, and more.
(614) 722-6200
nationwidechildrens.org/physical-medicine-rehabilitation

Onward Pediatric Therapies

Program: Outpatient, intensive, and group physical and occupational therapy. Services include traditional occupational and physical therapy (PT and OT), intensive PT and OT, PT and OT evaluations, Dynamic Movement Intervention (DMI), spinal stimulation, feeding therapy, sensory & emotional regulation, and social groups. They also offer summer camp with outdoor activities, social groups, sensory play, and more.
Eligibility: Ages 0-18 with neurodevelopmental diagnoses (Such as cerebral palsy, autism, down syndrome, spina bifida, genetic disorders, sensory processing delay, or feeding disorders).
Cost: Fee-for-service only. They do not accept insurance, Medicaid, or waivers.
Referral: Families refer themselves and schedule appointments online.
Located inside Be Well Collective: 3246 West Henderson Road, Columbus, Ohio 43220
onwardpediatrictherapies.com

Oracle Health Foundation

Provides financial grants to help cover costs related to children’s healthcare needs. Grants are provided for clinical costs, equipment costs, displacement, or vehicle modification. Examples of expenses covered include lodging and transportation related to a child’s care, clinical procedures, medicine, care devices/medical equipment, and assistive equipment. The grant recipient must be 21 years of age or younger, be under the care of a physician, and have no existing insurance coverage for the requested expenses. Families may request funds once per 12 months, with a maximum of three times in a child’s lifetime. Visit the website to complete an application.
(816) 573-6050
oraclehealthfoundation.org/pediatric-grants

Red Treehouse

Online resource directory supporting families and children with life challenges, disabilities, and healthcare needs from prenatal to age 25. The website helps families find resources such as special education, legal support, financial support for rare diseases, and more. Users can search for resources by need or medical condition.
redtreehouse.org

Safe Place Bedding

Provides safety beds and solutions to improve quality of life for children and adults with disabilities, whether at home or traveling. Families can go online to order a permanent bed, travel bed, and other safety items. The beds are Medicaid-approved in Ohio. The company accepts insurance and provides liaison services to coordinate care between your physician and insurance. Their in-house physical therapist can assist with Letter of Medical Necessity if needed.
Call or Text: (614) 602-5196
Program Brochure
Website: safeplacebedding.com

Southeastern Ohio Center for Independent Living (SOCIL)

Assists people of all ages with disabilities to live more independently. The majority of their board and staff are people with disabilities assisting others. They provide information and referrals for housing, education, transportation, benefits, and other community resources. The Assistive Technology program loans eating utensils, screen readers, magnifiers, autism sensory items, and more. They also offer free group living skills classes and support for youth with IEPs. Call to report ADA violations in Fairfield and Hocking counties.
Fairfield County: 418 South Broad Street, Lancaster, Ohio 43130
Hocking County: 96 West Hunter Street, Logan, Ohio 43138
(740) 689-1494
socil.org

The Perlman Center for Cerebral Palsy (Assistive Technology)

Provides care for children, adolescents, and adults with cerebral palsy, muscular dystrophy, spina bifida, spinal cord injury, and other neuromuscular disabilities at multiple locations through Cincinnati Children’s Hospital. Services include case management, occupational therapy, speech therapy, and early childhood integrated therapies. They also provide comprehensive assistive technology evaluations for all ages.
(513) 636-4601
3333 Burnet Avenue, Cincinnati, Ohio 45229
5642 Hamilton Avenue, Cincinnati, Ohio 45224
9560 Children’s Drive, Mason, Ohio 45040
cincinnatichildrens.org/service/a/aaron-perlman-center

Tourette Association of America

Nonprofit working to raise awareness, advance research, and provide support to patients and families impacted by Tourette Syndrome and Tic Disorders. The website has health information for kids, families, and professionals; toolkits on topics like bullying and transition to adult care; and information on research and clinical trials. They also offer online events and information on support groups.
(888) 486-8738
tourette.org

United Cerebral Palsy (USP)

Serves children and adults with disabilities in the greater Cleveland area. Services include occupational therapy (OT), physical therapy (PT), speech-language therapy, educational day programs, summer camps, adult day services, and assistive technology assessments.
10011 Euclid Avenue, Cleveland, Ohio 44106
(216) 791-8363
ucpcleveland.org

UnitedHealthcare Children’s Foundation (UHCCF)

Provides medical grants for families to pay for healthcare services related to a major medical condition that are not covered by their family’s insurance plan. Children must be 16 years old or younger, be a U.S. citizen, and have coverage through a commercial health plan to qualify for a grant. Families must meet income eligibility requirements. Applications must be submitted on a computer, not phone or tablet. Visit the website for a full list of requirements and for application instructions.
(855) 698-4223
uhccf.org

Valemee – Inclusive Gym & Fitness Training Center

Adaptive fitness program for people with physical, neurological, and developmental challenges, and their caregivers, to achieve optimal health and fitness. Athletic trainers, gyms, and recreation centers can become certified in the program. They provide personal training and group fitness classes at their partner gyms in Central Ohio. Individuals can call or go online for an intake meeting where Valemee will get to know you and your goals, perform an assessment, and find a gym near you.
(567) 203-8423
valemee.com

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